24 Jul 2017
2017 Melbourne Gay Periodic Survey Results
The results of this year’s Melbourne Gay Community Periodic Survey demonstrate a growing community confidence in the efficacy of biomedical HIV prevention strategies amongst gay men and other men who have sex with men (MSM). This includes a nearly threefold increase in the uptake of pre-exposure prophylaxis (PrEP) and over 97% of men living with HIV on treatment having achieved an undetectable viral load (UVL). The 2017 results also recorded the highest ever level of HIV testing which has increased over time to 90% of men in the survey - continuing the upward trend over the last several years.
Conducted by the Centre for Social Research in Health at UNSW, the 2017 survey captured the responses of 2,956 gay men and other MSM to a broad set of questions related to sex, relationships and sexual health.
The proportion of men using PrEP increased from 6% in 2016 to 16% in 2017, with most of the men on PrEP in the 2017 survey (84%) obtaining it from a research study or trial. In Victoria, PrEP has been made available through the PrEP-X study, sponsored by the Victorian Government, Alfred Health, and the Victorian AIDS Council (VAC).
VAC CEO Simon Ruth said that these findings add momentum to prevention efforts across the community.
“This is further evidence that when it comes to HIV prevention, gay men are at the forefront in protecting themselves and others. When taken consistently, PrEP is proven to be close to 99% effective at preventing HIV.”
“What we need now is for the Commonwealth to list PrEP on the Pharmaceutical Benefits Scheme as soon as is possible to ensure all people at risk of HIV can benefit.”
Over 99% of men living with HIV in the survey reported being on HIV treatment and over 97% of those men in treatment having an undetectable viral load – meaning they are not infectious and cannot pass on HIV.
“HIV positive men are playing a substantial role in the low rates of new HIV infections by working to maintain an undetectable viral load,” said Brent Allan, CEO of Living Positive Victoria.
“There is increasing evidence that UVL amongst men living with HIV will be a key factor in the decline of new diagnoses in Australia.”
The majority (87.7%) of HIV positive men who have condomless sex with casual partners reported UVL as their primary risk reduction strategy.
“Biomedical HIV prevention tools mean that safe, condomless sex is possible; however, PrEP and UVL won’t protect people from other STIs so it’s important that sexually active men test regularly to maintain their sexual health and wellbeing,” Mr Ruth said.
The 2017 survey results around testing are encouraging with 77% of men testing for HIV in the previous 12 months (the highest level recorded in the survey) and an increase in the proportion of men reporting 3 or more HIV tests in the previous year (30% in 2017). Over 92% of men living with HIV reported an STI test in the previous 12 months, and STI testing amongst HIV negative men is continuing to rise with nearly 78% having tested in the past 12 months.
13 Jul 2017
New campaign to address risky drinking behaviours amongst LBQ women in regional Victoria as part of VicHealth initiative
Through VicHealth’s Alcohol Culture Change Initiative, the Victorian AIDSCouncil (VAC) will be leading a two-year project to address potentially risky drinkingbehaviours amongst lesbian, bisexual, and queer (LBQ) women living in regional Victoria.Aimed to increase social support for low-risk drinking and reduce the impact of alcohol, theproject will receive over $200,000 to develop and implement a health promotion campaignaimed at creating a culture of support and encouragement to reduce risky drinking in fourregional areas of Victoria including Bendigo, Ballarat, Morwell, and Geelong.
VicHealth CEO Jerril Rechter said, “We know that one-size doesn’t fit all – Victoria is a diversestate with many drinking cultures. These new projects will target groups of people mostlikely to drink at risky levels.”
VAC CEO Simon Ruth said, “We know that drinking behaviours amongst same sex attractedwomen pose considerable risks to their ongoing health and wellbeing. This funding willallow us to expand upon our existing services to reach those women in regional centres, andchallenge some assumed social norms and attitudes around drinking by encouraging positivebehaviour change and peer support.”
The project aims to establish focus groups from its four key regional centres to consult inthe development of a social marketing campaign. Furthermore, the project will work closelywith LBQ women’s community networks and health service providers in regional settingsand raise awareness of risky behaviours and support pathways.
“As a community-led organisation, lesbian, bisexual, and queer women have played animportant role in VAC’s work since it’s very founding. That tradition will carry on as thisproject aims to understand and influence the values, attitudes and beliefs of LBQ womenand their support networks of friends, family, and co-workers,” said Ruth.
Rechter added, “This initiative is about people socially supporting one another to reducehigh risk drinking, resulting in reduced harm for themselves, their family and friends, thosein the vicinity and the broader community.”
For more information on VicHealth’s Alcohol Change Initiative, go to: www.vichealth.vic.gov.au/programs-and-projects/alcohol-culture-change-initiative
28 Jun 2017
Victoria’s new HIV Strategy emphasises the importance of a community-led response
28 JUNE 2017 - The Victorian AIDS Council (VAC) welcomes the Andrews Government’s announcement of Victoria’s HIV strategy for 2017-2020 - setting the bar higher as we approach the global targets of 90-90-90 in HIV diagnosis, treatement, and viral suppression and recognising the importance of the community-controlled response in reaching those goals.
Announced this morning by Minister for Health, the Hon Jill Hennessy, the plan aims to renew and reaffirm Victoria’s commitment to the vital elimination of new HIV transmissions by 2020 by working closely with those communities most affected.
“We applaud the Government on their dedication to working with the community-controlled organisations in the ongoing response to HIV in Victoria,” said VAC CEO Simon Ruth. “This plan recognises that HIV affects a broad range of people, including women and members of the trans and gender diverse community, as well as acknowledges that HIV continues to disproportionately affect gay, bisexual, and other men who have sex with men.”
“As the Government affirms that ‘in Victoria, equality is not negotiable’, we want to ensure this disparity in health outcomes is addressed.”
The strategy also recognises the important role HIV pre-exposure prophylaxis (PrEP) will continue to play in HIV prevention. The PrEP-X study in Victoria now has 3,800 people enrolled and expects to reduce new HIV infections by 30 percent.“Victoria’s rapid enrolment rates in PrEP-X have demonstrated that the community is serious about taking control of their sexual health and wellbeing and accessing this game-changing tool in HIV prevention,” said Ruth.
“Our plan forward will need to be a comprehensive one ensuring HIV testing is accessible and affordable to everyone and that we respond to the needs of people living with HIV - in particular, those aging with HIV.”
22 May 2017
VAC responds to PrEP-X Victoria Seroconversion
VAC has learned that a person on the Victorian PrEPX study has seroconverted and become HIV positive. There are two ways that this may have occurred.
• If a person is not adherent to their PrEP regimen (taking the prescribed dose regularly) it is possible that they would not be protected against acquiring HIV;• If a person comes into contact with a person living with HIV who has detectable viral load together with a strain of the virus that is resistant to PrEP medication it is possible (although extremely rare) that they might acquire that viral strain of HIV.
“Currently there are over 100,000 individuals who are taking PrEP globally as a way to protect themselves against HIV acquisition. To date there have been no confirmed cases in Australia of a person on PrEP being infected with a drug-resistant HIV,” commented VAC CEO, Simon Ruth.
“There have been no reported occurrences of widespread PrEP failure here or around the world where in many locations PrEP is approved and subsidised. The vast majority of people taking PrEP in this country and around the world continue to be protected by this powerful HIV prevention tool.”
Mr Ruth went on to stress the importance of continuing to consider all options when it comes to HIV prevention.“It is important that gay men and all people at risk of HIV infection consider and decide on the best way to protect themselves from the range of safe sex options available to them,” he said.
For more information or comment, contact Liam Clark on firstname.lastname@example.org or (03) 9865 6700
10 May 2017
VAC, JOY 94.9 and Switchboard partner to recognise volunteers at inaugural L.O.V.E. — LGBTI Organisations Volunteer Event
Last night, as part of National Volunteers Week, the Victorian AIDS Council (VAC) partnered with community radio station JOY 94.9 and LGBTI telephone and webchat counselling service Switchboard Victoria to host L.O.V.E. - LGBTI Organisations Volunteer Event. Held at St Kilda Town Hall, the event recognises the vital contributions volunteers have made to the work of these three organisations in supporting LGBTI communities.
While JOY and VAC volunteers regularly combine forces with the Laird Hotel at Northside Bizarre each October, this is the first time the three community organisations have partnered together to recognise the substantial contribution of volunteers.
L.O.V.E. sees the three LGBTI community organisations combine forces to recognise and celebrate the remarkable contribution of volunteers on a grander scale. The event recognised a number of long-serving volunteers having served at least 5, 10, 15, 25 and even 30 years of service as a volunteer.
“Volunteers are the lifeblood that keeps organisations like ours alive,” said VAC CEO Simon Ruth. “Without our volunteers, none of us could operate the services we provide to the community. It is only fitting that we celebrate and formally recognise the longstanding contribution volunteers have made.”
JOY CEO Tenille Moisel added, “JOY is thrilled to work with VAC and Switchboard to recognise our volunteers for the tremendous support they provide our organisations and the broader LGBTI community.”
Switchboard General Manager, Jo Ball highlighted the collaborative nature of volunteers in our community.
“Considering that many Switchboard volunteers also volunteer at VAC and JOY it only makes sense to hold a joint event. As we all know, we are stronger together, and I look forward to continuing to find projects that VAC, Switchboard and JOY can collaborate on.”
The event included performances from the Melbourne Rainbow Band and invited guests include City of Port Phillip Mayor Cr Bernadine Voss with Victoria Police Gay and Lesbian Liason Officers (GLLO) Gabby Tyacke and Travis Costelow to host the event.
24 Mar 2017
VAC supports the Council of Australian Governments calling on the Federal Government to fund PrEP.
The Victorian AIDS Council (VAC) supports the call by the State and Territory Health Ministers, lead by Victoria’s Minister Jill Hennessy, to the Federal Government to fund pre-exposure prophylaxis (PrEP) access nationally, ensuring availability for all Australians. Access to PrEP is vital to reaching the target of virtually eliminating new HIV transmissions by 2020, as established by the National HIV Strategy.
Furthermore, VAC welcomes the Andrews Government’s announcement of a further $100,000 of funding to the PrEPX trial – making PrEP accessible to more Victorians at risk of HIV. This further funding puts this highly effective HIV prevention tool in the hands of an estimated 600 additional Victorians.
PrEP is a powerful HIV prevention tool, where HIV-negative people take medication every day to almost completely reduce their risk of contracting HIV.
Following its initial investment in the PrEPX trial, VAC committed an additional $100,000 to PrEPX in January in order to meet overwhelming demand after the trial met capacity. At that time, the organisation also called upon the Federal Government to fund PrEP access nationally.
This additional funding means that those currently on the waiting list will be able to access PrEP; however, this additional expansion alone will not be enough to stem the need in the community for this powerful HIV prevention method. The Victorian PrEPX trial has been the fastest enrolled clinical trial of PrEP anywhere in the world.
“This further commitment from the Andrews Government is an important step, but now we need the Federal Government to take action,” said VAC CEO Simon Ruth.
“The fact that so many are enrolling in the trial shows real motivation by the public to take responsibility their sexual health and the prevention of HIV transmission. At this stage, the Federal Government needs to acknowledge that community demand and demonstrate their commitment to making PrEP accessible and affordable to everyone as quickly as possible.”
At this point in time, half of Australia’s states and territories have no current government supported access to PrEP; South Australia and Western Australia are due to commence trials in the coming months, while Tasmania and the Northern Territory are without government supported access entirely.
Even among the states and territories with trials, only the New South Wales trial is currently uncapped. This leaves those seeking PrEP access in Victoria, Queensland and the Australian Capital Territory at the mercy of waiting lists that rely on unpredictable and unreliable funding.
“This level of inequity and inconsistency in PrEP access across the states is shameful and harmful,” said Michael Whelan of community PrEP activist group PrEPaccessNOW.
“The Federal Government cannot stand idly by and just hope that this issue will simply fix itself. PrEP works — and federal funding is essential to ensure PrEP access to all Australians.”
VAC calls on the Commonwealth Minister for Health and his department to:• Support equitable access to PrEP across Australia.• Work with the states and territories to ensure that equitable access to PrEP is available for all Australians at high risk of HIV.• Encourage the Turnbull Government to fast track the listing of PrEP on the PBS.
VAC President Chad Hughes stressed the importance of PrEP in reducing new HIV transmissions.
“We would like to thank Minister Hennessy for continuing to support the PrEPX trial and helping thousands of Victorians at risk of HIV to access PrEP. We look forward to a time when access to this important tool in the fight to end HIV is available to everyone who needs it.”
If you live in Victoria or South Australia and wish to enrol in the PrEPX trials, visit the Alfred Health PrEPX website by following the link to: https://www.alfredhealth.org.au/prepx
For more information about whether PrEP is right for you, or about personal importation, see the following links:
PrEP’D For Change web site: http://www.prepdforchange.com/PrEPaccessNOW web site: https://www.prepaccessnow.com.au/
23 Feb 2017
Gay, bi and queer men’s stories of meth use encourage healthy conversations in new VAC resource
The Victorian AIDS Council (VAC) has launched ‘Be-Longing for It’, an online resource to encourage gay, bisexual and queer men to have conversations about taking care of themselves and each other when it comes to methamphetamine use, sex and intimacy.
The resource is based on an exhibition held by VAC during the 2017 Midsumma Festival. VAC worked with community-based artists Sam Wallman, Michele Vescio and Bailey Sharp to develop the exhibition, which drew on real gay, bi and queer men’s stories of meth use within the community. The artists worked with these stories to create animated videos and audio stories exploring the men’s experiences.
The resource and the exhibition are a response to the ongoing conversation about meth use within gay, bi and queer male communities. According to the 2013 National Drug Strategy Household Survey gay and bisexual respondents were almost three times more likely to have used meth recently than their heterosexual counterparts.
“Gay, bisexual and queer men enjoy drugs at much higher rates than the general community, particularly methamphetamines. When drug use becomes problematic it can have a severe impact on people’s health and wellbeing,” said VAC CEO Simon Ruth.
“We consider peer stories to be a valuable tool in reducing the harms associated with methamphetamine use. They capture the complexities of meth use in our communities and make understanding them more accessible to everyone. This project will foster important conversations between our communities and alcohol and drug services.”
Jeremy Wiggins from VAC coordinated the project and interviewed the men involved about their meth use.
“I interviewed eight men about their experiences with methamphetamine use for Be-Longing For It. Some of the men felt their use was really destroying their lives, while others had developed tools and strategies to manage their use within particular personal boundaries,” said Wiggins.
“The stories are very individual, but a common link between them all was about a desire to belong and to feel connected.”
‘Russell’ (not his real name) was one of the eight participants who shared their real-life stories of methamphetamine use for the project.
“For me it was a crucial opportunity to convey my own experience through a different medium to reach and impact a broader audience and engage people around complex issues like drug use, addiction, social isolation, sexual activity and identity among gay, bi and queer men,” Russell said.
“The raw and sometimes confronting material conveys powerful truths in an entirely accessible way and leads to candid and unexpected insights and crucial conversations around reducing harm and addressing problematic use.”
The Be-Longing For It stories are available as part of VAC’s TouchBase website, a national resource on alcohol and drugs for LGBTI communities. Find the stories here: http://touchbase.org.au/stories
For more information about gay and bisexual men and drug use, see the National Drug Strategy Household Survey detailed report, p. 95–96: http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=60129549848
17 Jan 2017
VAC funds access to PrEP for 600 Victorians, calls on Federal Government to fund further PrEP access
The Victorian AIDS Council (VAC) has announced it will give an additional $100,000 to the PrEPX trial to fund access to pre-exposure prophylaxis for HIV (PrEP) for 600 Victorians at risk.
VAC’s announcement comes months after PrEPX reached capacity for men living in metropolitan Melbourne—there is already a substantial waiting list for those wishing to access PrEP as part of the trial, which is the fastest growing PrEP access scheme in the world.
In light of VAC’s announcement and the fact that the PrEP has already been knocked back once for listing on the Pharmaceutical Benefits Scheme (PBS), VAC is also calling on the Federal Government to use discretionary funding under the Communicable Disease Prevention and Service Improvement Fund to support broader access to PrEP across Australia.
“It is an embarrassment that we don’t have access to PrEP via the Pharmaceutical Benefits Scheme in Australia, and it’s time the Federal Government looked at other options. People at risk of HIV across most of the country don’t have subsidised access to PrEP, and even in states that do we’ve seen spaces in the public PrEP trials fill up in no time,” said VAC CEO Simon Ruth.
“The Seventh National HIV strategy is now three years old, and HIV-prevention has changed a lot over that time—the strategy only mentions PrEP in passing. We call on the incoming Federal Health Minister to show a genuine commitment to HIV-prevention and take PrEP seriously.”
VAC President Chad Hughes stressed the importance of PrEP to reducing new HIV transmissions.
“The Federal Government has committed to ending HIV by 2020, and it can’t meet that commitment without PrEP,” said Hughes.
“We again congratulate the Victorian Government for establishing the PrEPX trial and helping thousands of Victorians at risk of HIV access this vital HIV-prevention tool.”
PrEP is a highly effective HIV-prevention method, where HIV-negative people take HIV medication to significantly reduce their risk of contracting HIV.
PrEP is approved by the Therapeutic Good Administration in Australia, but was rejected by the Pharmaceutical Benefits Advisory Committee (PBAC) for listing on the PBS in August last year. It is not likely to be reconsidered for listing until later this year.
Spaces are still available on the PrEPX trial for people living in rural and regional Victoria.
If you live in metropolitan Melbourne and wish to join the waiting list to enrol in the PrEPX trial, visit the Alfred Health PrEPX website and follow the link to access the waiting list: https://www.alfredhealth.org.au/research/research-areas/infectious-diseases-research/prepx-study
13 Jan 2017
All-star lineup for VAC’s 2017 Midsumma Hypothetical, including David Marr, Benjamin Law and Judith Lucy
The Victorian AIDS Council (VAC) Midsumma Hypothetical is back for 2017 with an allstar lineup that includes journalist David Marr, author Benjamin Law and comedian Judith Lucy.
Now in its third year, VAC’s Midsumma Hypothetical uses the format once made famous by Geoffrey Robertson on the ABC in the late 1980s: a panel of guests discuss questions on a particular theme arising from a hypothetical narrative. Previous VAC hypotheticals have looked at drug and alcohol issues within LGBTI communities, and at the state of LGBTI issues in federal politics.
This year’s hypothetical is Who Killed Sharon Swallows?, a whodunit set in a small country town in Victoria where each panellist is under suspicion for the murder of fictional right-wing columnist Sharon Swallows.
As the hypothetical unfolds, the columnist’s attacks on the LGBTI community place each panellist in the spotlight as a potential suspect and raise difficult questions. Should free speech mean columnists can say whatever they want? Should businesses be able to discriminate against LGBTI people on religious grounds? Is being LGBTI fundamentally un-Australian?
“After a year when LGBTI issues became a major fault line in both Australian and international politics, a hypothetical built around a caricature of a right-wing columnist is a fun way to get at some of the issues dividing the broader community,” said VAC CEO Simon Ruth.
“It’s important for our community to be able to talk openly about thorny topics like racism, HIV stigma and transphobia, and the hypothetical is a great opportunity to foster discussion.”
Panellist Professor Dennis Altman has a connection to the original Geoffrey Robertson hypotheticals.
“Thirty years ago I clashed with Fred Nile on Geoffrey Robertson’s Hypothetical Does Dracula have AIDS? A great deal has changed since then, but we’re still facing some of the same bigotry, if in very different guises,” said Altman.
Back for his third year in the Hypothetical and his second as moderator is comedian Adam Richard.
“I’m looking forward to a frank exchange of opinions and some big laughs from a very diverse panel. Given the broad intellect of our panel, I’m going to be on my toes the entire time. It’s gigs like this where I really regret the fact that I didn’t finish university,” said Richard.
“I can’t even imagine the kinds of innuendo I’m going to have to wrap my tongue around given the title is Who Killed Sharon Swallows? VAC have no doubt cooked up quite a ribald murder mystery for me!”
The full line-up of panellists for the 2017 VAC Midsumma Hypothetical:
Moderator — Adam Richard, comedianDavid Marr, journalist and biographerBenjamin Law, journalist and authorJudith Lucy, comedianProfessor Dennis Altman, author and academicAssociate Professor Edwina Wright, HIV researcher and clinicianKaren Price, Deputy CEO at ACONMichelle Sheppard, broadcaster and entrepreneurJoel Murray, advocate and activistTennille Moisel, JOY 94.9 CEO
Who Killed Sharon Swallows? is on Tuesday, 17 January at 7pm at Deakin Edge, Federation Square. The event is free to attend but spaces are limited. To register, go to vac.org.au/hypothetical.
The event will also be broadcast live on Channel 31, and via a live stream on VAC’s Facebook page.
12 Jan 2017
VAC responds to reports of homophobic violence at Footscray Park
The Victorian AIDS Council (VAC) has been made aware of several incidents of violence being committed in parks and public places around Melbourne, particularly at Footscray Park.
The acts of violence have included homophobic abuse and verbal threats of violence; and actual physical violence. In many instances, individuals have been lured into secluded areas then assaulted by large groups of men.
These attacks are terrible and inexcusable. Every person has the right to safety, and should be able to visit public places without fear of violence or intimidation.
VAC has informed Victoria Police about these attacks, and is committed to working with them to make Footscray Park — and all public places — safe places for our community.
Victoria Police employs a group of specially trained officers who act as contacts for members of the LGBTI community. Known as LGBTI Liaison Officers (or GLLOs), these officers can take reports and complaints from the LGBTI community and ensure they are handled appropriately and effectively.
A complete list of GLLOs is available on the Victoria Police website at www.police.vic.gov.au/content.asp?Document_ID=30300.
“If you are the victim of violence, or observe it happening, it is critical that you report it to the police. This helps raise awareness of homophobic violence, and helps the police in their efforts to prevent it,” said VAC CEO Simon Ruth.
“When reporting to the police you can ask to speak with that station’s GLLO. If you are not comfortable approaching GLLOs, you can contact VAC, and we can pass on any information on incidents to the releavnt authorities.”
To report an incident to VAC, contact Michael Whelan on (03) 9865 6700. If you have witnessed or been the victim of violence, or need someone to talk to, please contact VAC’s counselling team on (03) 9865 6700.
Alternately, you can contact the Gay & Lesbian Switchboard on 1800 184 527 for free, confidential, and anonymous telephone counselling and referrals.
10 Jan 2017
Melbourne Gay Community Periodic Survey returns to 2017 Midsumma Carnival
During the 2017 Midsumma Festival the Victorian AIDS Council (VAC) will again bring the most significant survey of gay and bisexual men’s sexual health in Australia, the Gay Community Periodic Survey, to Melbourne.
Along with the Centre for Social Research in Health (CSRH) and the Kirby Institute at UNSW, VAC will be conducting the Melbourne Gay Community Periodic Survey in 2017, beginning at this year’s Midsumma Carnival on Sunday, 15 January. From Carnival until the following Sunday, 22 January, gay and bisexual men who have sex with men (MSM) will be asked to participate in the survey at a range of locations across Melbourne, including medical clinics, social venues such as pubs and bars, and sex-on-premises venues.
Only Melbourne men who have had sex with another man in the past five years should complete a survey form, as well as men who don’t live in Melbourne but who regularly participate in the Melbourne gay community. The survey is inclusive of trans men who have sex with men.
The survey is completely anonymous, and the results are communicated later in the year via LGBTI and other media, through public meetings and seminars, in online reports, and through journal articles.
In 2016 the results attracted significant media attention when the survey revealed “open relationship” to be the most common relationship status among the men surveyed.
First conducted in Melbourne in 1998, the short survey takes a snapshot of gay men’s sexual practices related to the transmission of sexually transmitted infections (STIs), including HIV. The survey is important because it gives a snapshot of the lives of gay and homosexually active men in Melbourne from year to year. It allows comparisons to be made over time and for a picture to emerge of the changes in sexual practices and partnering habits, drug use, HIV and STI rates, and testing habits.
“All same-sex attracted guys are welcome to participate, including trans guys: gay or bi, HIVnegative or HIV-positive, we want you to fill out the survey. Not all questions need to be answered by everyone. There are specific questions for men who are living with HIV and general questions that all can answer,” said VAC’s Tex McKenzie.
“Look for the survey in bars, dance clubs, medical clinics and sex-on-premises venues in the week after Midsumma Carnival if you don’t see us there."
VAC CEO Simon Ruth added: “The information we get every year from the Periodic Survey is invaluable. This data helps us know what issues are affecting our community, and where to focus our efforts when it comes to health promotion—from HIV and STI prevention to mental health and alcohol and drug issues.”
22 Dec 2016
HIV organisations condemn stigmatising disclosure in media
Harmful reporting has occurred across multiple media outlets today involving the disclosure of an individual’s HIV and hepatitis C status and the use of highly stigmatising language in making this disclosure.
The public disclosure of a person’s HIV status without their consent compromises Australia’s efforts to prevent HIV transmission. When people worry that their HIV status might be disclosed, they are less likely to test for HIV and other sexually transmitted infections and, in the case of someone living with HIV or viral hepatitis, to access care to commence life-saving treatment.
Confidentiality and privacy are fundamental human rights. People living with HIV often report discrimination and stigma, which is almost always based on fear and misinformation. The publication of a person’s HIV status can expose them to abuse and discrimination, and perpetuates the idea that it is acceptable to disclose a person’s private health information without their consent.
In the context of this story, the young man’s HIV status is irrelevant. The use of this information is sensationalist, and portrays people living with HIV and viral hepatitis as harmful and dangerous when evidence shows that the majority of people go to considerable efforts to improve their health and prevent onward transmission.
Describing the person in question as an “HIV sufferer” contributes to the false notion that people living with HIV are powerless victims. People living with HIV are leaders in the HIV response, and continue to be invaluable partners in educating others about HIV, in preventing new cases of HIV, and in making advances in HIV science. In countries like Australia, HIV is not a death sentence. People living with HIV can live long and fulfilling lives, and deserve to be treated with the dignity and respect afforded to others.
We encourage the Australian media to adopt better journalistic standards regarding future reporting of HIV and viral hepatitis. The HIV Media Guide produced by the Australian Federation of AIDS Organisations (AFAO) at www.hivmediaguide.org.au establishes standards by which HIV can be reported in language that is neutral and non-offensive.
Shine SA Positive Life SA
Hepatitis SA Victorian AIDS Council
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